RR Phantom
Location : Wasted Space Job/hobbies : Cayman Islands Actuary
| Subject: I gave my eight year old medical cannabis and I don't regret it Tue Oct 07, 2014 7:49 pm | |
| My daughter Alice was the third girl in Australia to be diagnosed with CDKL5, a rare genetic condition, marked by the severity of its seizures, significant intellectual and physical disability, gut dysfunction and a myriad of other health issues.
As a baby, Alice was having up to 30 life threatening seizures a day and her neurologist told me “It’s like your baby’s brain is exploding – take her home to die, she is too sick to live”.
Over the last 9 years I have had no choice but to become a nurse, a doctor, a scientist, my own research assistant, a political lobbyist, and much more. Across the world it has been unanimously agreed that the life threatening seizures of children with CDKL5, like Alice, cannot be controlled by any current pharmacologically available anticonvulsant medication, diet, surgery or other intervention.
http://www.dailylife.com.au/life-and-love/real-life/i-gave-my-eight-year-old-medical-cannabis-and-i-dont-regret-it-20141006-3hdcg.html |
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